Monday, November 15, 2010

Thing #17 Rollyo

I'm going to talk about how Rollyo helped me in a specialized search.  I've been going through some serious h***over the last few days.  My little girl started exhibiting some seizure type behaviors and so I took her to her pediatrician who is now referring her to a neurologist.  I found a video on YouTube of a baby who was exhibiting the same type of behavior I have been seeing in my Anna.  It is known as infantile spasms.  Well this really looked like what I was seeing in Anna.  I had read somewhere that there is a slightly elevated risk of epilepsy in children with Down Syndrome.  I googled "down syndrome and infantile spasms".  I didn't come up with much.  I went to Rollyo and began to work with it to create a custom searchroll where I can find pertinent sites and save them.  I am now experimenting with this in order to help me in my research.  With Rollyo I was able to put together a list of sites I would like to search for specific information such as different medical websites, etc.  I was then able to come up with a more specific list of helpful sites which could give me info.  This is about as far as I got with Rollyo,  I am still a little confused as to what else it can do which could help a teacher.  I suppose you could conduct a metasearch by telling Rollyo to search only specific kid friendly  search engines (Yahoo Kids, etc.)  for information and this would leave out some of the irrelevent sites. Other than that,  I will read what my fellow students have to say about Rollyo in order to learn more.   In the meantime, please pray for my beautiful Anna.  I am having a hard time getting her in to see a neurologist.  It is ridiculous the amount of time they make you wait to pass referrals back and forth between doctors, etc.  One place told me they couldn't get her in until January!!!

4 comments:

  1. Oh wow! My heart goes out to you and Anna and I'll be keeping you and your family in my prayers. I'm glad you were able to put together a specialized search to help narrow down the sites! I can't believe they wouldn't make an exception or an "emergency" appointment. It seems like the possibility of seizures would push the urgency to squeeze you in earlier.

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  2. I will pray, too. Glad Rollyo helped you find out more info. Thanks for sharing.

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  3. Talk about a real life example of using your life long learning. I hope everything turns out all right and that you get a Dr. appt. quickly.

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  4. I'm so sorry to hear about your baby. I'll certainly be praying for her and your family.

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